Richard's Cancer Blog

WHERE ARE ALL THE MENS????

MAYBE I'M JUST NOT LOOKING WELL ENOUGH BUT IT SEEMS THAT THE GREAT MAJORITY OF ANAL CANCER VICTIMS ARE WOMEN.

ARE MEN JUST TOO SHY TO BE ON THIS SITE?

ALSO, IF WOMEN CAN GET CHECKED FOR THE HPV VIRUS..... WHY ARE THEY IN THE MAJORITY ON THIS BLOG SITE

ALSO, WHY IS IT THAT IT SEEMS THAT THE HPV VIRUS CANNOT BE DETECTED IN MEN?

I GOTTA HAND IT TO THE LADIES ON HERE..... U GALS WERE PURDY DANGED MACHO TO HAVE FOUGHT AND GONE THRU THE EXTREME PAIN, MISERY, ETC, ETC THAT CANCER TREATMENT PUT YOU ALL THRU.

NEVER LET IT BE SAID THAT WOMEN FOLK ARE NOT TOUGH BASTARDS!:)

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There are men on here but yes statistically there are way more women than men that get anal cancer. All the medical literature confirms more women than men get anal caner.

Men are not checked for HPV because men in general don't want to admit someone has ejaculated in their ass and are afraid of anal exams even if it's just a simple finger. Women don't necessarily get it from anal sex, fluids just tend to leak and run all about their nether region due to gravity. HPV will take up residence in any moist viable tissue it encounters. Not to mention it's not out of the question for HPV to move internally from a vagina to a rectum through a lymph connection or other internal highway.

Because the medical community has for so long turned a blind eye on gay sex nobody has done enough medical trials to prove that testing (anal equivalent of a pap smear) is worth the time and effort in men. Hopefully some of that will change as more men are out of the closet. There has also been a rise in HPV related throat cancers in men that I would say is probably attributable to the rise in gay sex acceptance. Plenty of guys that will do oral but don't progress further.

The medical community was also slow in deciding that boys should be HPV vaccinated as well as girls. In countries where both sexes are vaccinated routinely HPV rates have fallen drastically along with the associated cancers caused by HPV. If everyone were vaccinated at a young age we could basically wipe out the main cancer inducing HPV variants. Women would be happy if everyone was fully vaccinated because PAP smears would likely become an only as needed test instead of the painfully routine test it is now.

Women are indeed very tough. They have the pain of childbirth, mammograms, pap smears. I can tell you if you did that to man you'd never here the end of his bitching and moaning.
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I use to work in the surgery department and scheduled annual dysplasia checks (HRA) 60min exam probably the last 12 years, for all gay men; and just as I retired (maybe because of me) they decided to alert woman who confirmed anal sex, to have them; shortly after I left; they decided all woman should be tested with HPV; many of us have never had anal sex nor HPV, but got AC anyway.
Also, I found that my own surgeon was telling one of his gay patients to have the HPV shot even after he had HPV (symptomatic, unusual); but he didn't encourage me to have it. The last Hpv convention, they were talking about having everyone, including use get the shots. That would be somewhat relieving; even if it was a trial.
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Anal cancer is caused by skin to skin contact. Not anal sex. I’ve never had anal sex. Unfortunately the stigma of “that’s how you get it” silences so many. Men are the vector and have little to no symptoms when they are HPV infected. The best thing we can do is educate and immunize the next generation when they are 11-12 years old, so they don’t have to be us.
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Hmmm??yes ur right. These are good contemplation. Have to agree..us women here are pretty darn courageous and tenacious.
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It's not like it's through/done. too much damage.

They're are more women that get this than men in statistics.

I was told, in Seattle, there is a very organized community of AC mens support groups. It's different for the 2 sexes, so in this way they don't want women in the group. Just like women want to hear from women on the over all target zone damage. Guess what Rich; we have different body parts (effected).😉😜
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I have been on a support network for several years. Many of the anal cancer patients are men, but I have never talked to one...always wife or friend calling on his behalf...think guys just have a horrible time talking about this cancer.
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Thank you! I'll take that as a compliment! Yes, women are tough!


As for the nuumbers, many more women get anal cancer than men. You might find this website interesting.


https://seer.cancer.gov/statfacts/html/anus.html
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MRI #3 BEATS THE CRAP OUT OF CANCER

HAD MY 3RD MRI ON MONDAY MAY 6----8 MONTHS SINCE MY LAST CHEMO/RAD TREATMENTS AND I AM PLEASED AS PUNCH TO SAY I AM STILL CANCER FREE......!

still have the tingling feeling on the soles of my feet and i can not eat beans and raw greens as they go thru me faster than a turtle going up a steep hill dragging a 50lb rock.  also, still gotta be extra alert for strong coughing as it might "backfire"...........!

otherwise, i am pretty healthy, now able to walk up to 8 miles nonstop.....about half what i used to do but i magine that it will continue to get better.

the only meds i take are for the prostate.

i have not posted for about a couple of months or so but i. have been commenting on several of you alls blogs. 

ongoing issues are basically watching what i eat to keep the gut normal and the output consistantly solid....it seems that its more difficult post treatment to keep the poop solid.  i dont eat much ice cream anymore cause it goes right thru me if i eat too much of it and why eat ice cream if i can't finish a quart of it in one sitting....along with about a dozen brownies topped with sea salt.

i have been very busy at work and that gives me a lot of satisfaction but also tires me out.   still working on my cabin and hope to have it completed by july and then me and my doggies can take a week off and just chill out there...away from the big city.

i miss you all and hope your in good spirits and constantly moving forward.

thinking of you, richard

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I'm so happy for you!!! That's so great! You become stronger and stronger! Good job, Richard! Hugs!!!
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thanks and enjoy your weekend Olga
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It sounds like a lovely life! I am glad you are well and enjoying!
I asked for MRI's and was told they weren't appropriate. hmmm
Is your doc using the NCCN.org guidelines?
I home things continue to go well, and your energy comes back.
Big Hug
Hi. I'm 2 weeks post treatment and my tumour was similar in size to Richards. My next scan will be an MRI.
Richard likes this comment
Hi Dawn
much rather have done MRI.
Good to know.
Thanks
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sooooooo..... I don't really know all the ins and outs of the treatments but I do know it was an MRI...but then again, I thought MRI and Scans and PetScans were all and the same.....experts on here----chime in. its the big donut and they slide you in!!
Easterly, I hope you and yours have a relaxing weekend
hang in there Dawn.... time flys when you've finished treatment..... its been 8 months and it seemed to go pretty quickly....hoping ur healing goes smoothly and less painful as each day goes by
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I only had an MRI and a PET/CT as part of my workup. I had a few CTs at 6 mo intervals for the first 2-3 years; my oncologist left the system and his replacement doesn't think more are necessary. Actually, the NCCN Guidelines do not recommend
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I wouldn't know the diff if one of them came up behind me and kicked the living cancer out of me!!!!!
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Hi Richard! How nice to hear from you, especially since you are doing so well! Congratulations on the good MRI results! I'm glad you have been able to sort out the dietary issues. Sorry about the ice cream--I'm kind of like that too--why bother for just a half-cup! Enjoy the walks and that cabin! Take good care!
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I always allowed myself to "pig out" with no regrets/shame every now and then but now its more like "piglet out"...... not as much and not often.....which is prob good in the long run
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Love that turtle image! Got some turtle loving friends with whom i’m sharing... Huga.
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its a beautiful day in Los Angeles, hope your out and about and enjoying your weekend
Am able to travel after treatment and on my way home from visiting friends in my Madrid assignment!
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WEE HAW! ENJOY!
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eat plenty of great local food for me
My GI doctor recommended 1 tablespoon of Benefiber every day. That does the trick for me.
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hmmmm. me thinks I'm gonna give it a try...... I've been chewing on an old board I found out back of the cabin....just gotta watch out for the termites----kinda bland but do provide plenty of protein!!!

Jeanie enjoy your weekend
You can put Benefiber in anything. it doesn't have a taste. I put it in coffee or cream of wheat.
Such great news Richard. My problem is the opposite trying to prevent constipation. I need to have 1 to 2 BMs per day or will feel miserable. But most importantly is being cancer free.
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I am training myself to have 2-3 movements from 7am-9:30am and then I can go about my day. I am having to eat dinner earlier. most times it works unless I have the funnies and then its touch and go and I have to be careful.
AT THE END OF THE DAY.....AS YOU SAID INSHOCK----BEING CANCER FREE trumps EVERYTHING!!!!!!:)
so awesome for you! congrats!!
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enjoy your weekend Maggie
A couple of us here have had issues with dairy post treatment. I can no longer eat real ice cream or anything with cream/milk in it. Something about the milk protein - goes right through me. Luckily there are so many dairy alternatives these days that I don't miss it.
Glad everything else is good!
D
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i still drink whole goats milk and cheese....ice cream in small doses
Richard - you continue to make me smile & I'm so happy you are thriving and doing well. Keep on truckin' and enjoying life. Lisa
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that my friend is the only choice i have other than being pouty and "poor me"..... i survived the "c" word and i only have time to look forward with optimisim and posititivism..... that is one of the best things on these blogs.....!:)
Richard, it's always great to read your posts! It's quite amazing how we are able to share all this talk of bowel movements, consistency, frequency maybe we need to add colour too....
I try to do the same with the bm training and hope it's all done and over in the morning. Not always the successful, and I really try not to mess about too much with my diet. Also, I have great faith in Psyllium fibre, which I think tastes like cardboard, but I wouldn't live without it now. A lovely stool bulking agent and I've got used to it.
Keep up the good work! You'll get stronger and stronger for sure.
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yup.... i think my biggest issue post "c" IS HAVING CONSISTENT STOOLS......
AND YES, I NEVER IN MY LIFE THOUGHT I WOULD BE CONVERSING WITH OTHERS ABOUT MY STOOLS, ANUS, PE-NILE AREAS, ETC....BUT HERE WE ARE.
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Great news Richard! I'm almost 2 years out from treatment and still have colon issues with beans, salad, and fast foods ugh. Just had a PET scan last week and all clear, so next one in 9 months! Keep us posted on your progress this year, we are all here for you, hugs
Richard likes this comment
CONGRATS JANICE....i have always loved beans but now beans do not love me back, same goes for salads---raw greens to be more precise. don't do a lot of fast foods so i don't really know bout them.
i am sooooooo gay for your fantastic fortunes!
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Vital Info

Posts

July 10, 2018

Los Angeles, California 90005

February 6, 1951

Cancer Info

Anal Cancer

squamous cell carcionoma

June 4

Stage 2

4.1 - 5.0 cm

Negative

No

Fluorouracil (5-FU)

the fears associated with it, the unknown, the WAIT FOR THIS TO START

always learning, that its all around us....its not till it hits you that you realize how common it is

stay positive with me. stay in the now.

not as of 6/04/2018

WEST LOS ANGELES V.A. MEDICAL CENTER-WESTWOOD

during treatment.....try your hardest not to give up on your treatment.....yea- it almost felt like it was killing me but here I am

believe in yourself and/or in your beliefs/god/etc

September 5

1st MRI NOV. 5 2018--NO SIGN OF TUMER/GROWTH....2ND MRI--NO SIGN OF TUMER/GROWTH

a week after having completed my PSA and urine tests(5/22/18), i noticed blood in the toilet and completed the F.I.T--fecal immunochemical test.... I forgot to mail it in and drove to the VA and had them give me another one, did it and that afternoon i returned it...two days later i received a call to schedule a colonoscopy for June 04, 2018. results came back positive for a ployp that was excised and also a 4-5cm malignant growth on the dentate line of the anus--right smack in/around my spinchter muscle. T3N0M0...prognosis seems to be really good as it has not traveled nor gone into nodes. scheduled to start chemo/radiation with 5-FU and mitomyacin first 4 days and last 4 days using a PICC line.

AM NOT USING THE 5-FU....INSTEAD ITS CAPECITABINE 500MG

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