Richard's Cancer Blog

YOU WOULD OF THOUGHT I HAD HAND/FINGER CANCER

CAUSE I HAVEN'T WRITTEN ANYTHING FOR LIKE MONTHS..... HEARING ABOUT DEBORAH'S HUBBY LEAVING THIS EARTH JOLTED ME BACK.....

JUST SO EVERYBODY KNOWS---I'M NOT MUCH OF A STICKER WITH MY FELLOW HUMANS---JUST ASK THOSE THAT ARE BLOOD RELATED.....

HELL---ASK MY FRIENDS!

ITS MY DOGGIES AND ME.

 

ANYWHO.....

ITS 14 MONTHS FREE AND COUNTING.

I SAID NO TO ANY COLONOSCOPY

NO TO APR

NO TO SEEING MY CHEMO DR FOR A WHILE AT LEAST....I'D GO IN AND VISIT FOR LIKE 5 MINUTES AND THEN I'M OUT THE DOOR...WASTE OF TIME

ANYWAY....AS I BELIEVE I STATED A WHILE BACK IF THE ASSHOLE CANCER COMES BACK....IT COMES BACK...I APPLY FOR CALIFORNIA EUTHANSIA DRUG PROTOCOL AND TRY AND GET THE MEDS AND GO FROM THERE.

I AM LIVING EVERYDAY KNOWING THAT I AM CANCER FREE

STILL NOT TOO SURE IF I STILL WANNA CONTINUE TO DO THE MRI/CAT/DOG/PET SCAN THINGS.

MY GOAL IS TO. FINISH MY CABIN, WORK ANOTHER 3 YEARS, PAY THE CABIN OFF AND RETIRE.

JUST REMEMBERED..... I HAVE BEEN HAVING SOME ISSUES WITH "HEART BURN"/"ACID REFLUX"/WHATEVER IT IS....THE DR THOUGHT IT WAS A HEART ATTACK SO I HAD TO TAKE 4 TESTS AND TURNS OUT ALL OF THE HEART DO MA HICKIES ARE DOING PURDY DARNED FANTASTICO CONSIDERING MY CHOLOESTROL IS LIKE 265.....BUT THEN AGAIN, I DON'T GIVE A RATS PETUNIA AS I DON'T BELIEVE IN THE CHOLOESTROL HOOPLE.

WILL SEE A THROAT/GASTROINTESTIONAL PERSON NOV 25TH.

I HAVE BEEN GETTING THESE TERRIBLE POOP SMELLS COMING FROM MY THROAT EVERY ONCE IN A WHILE...ESP WHEN I FEEL THE BURN....

ANY IDEAS KIDS?????

lastly, i read your posting like once a week when i go thru my yahoo emails.

you gals and a few guys on here.... i do think about you, just feel overwhelmed sometimes until something like hearing someone dying that jerks me back into the fold.

wishing all a wonnerful and peacefilled evening.

richard

 

Olga sent you a hug.
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Thank you for your updates, Richard. I was thinking about you. You know better than any one what you need in your life. Living in a cabin with your dogs sounds amazing. Talking about your heartburn and that bad smell, do you have these symptoms after you eat specific food? It could be. My heartburn symptoms were different. Actually I did not have a heartburn at all, it was silent. In the beginning of March I started to have swallowing problems that lasted for a few months. EGD showed severe erosion, swelling, hiatal hernia, and an ulcer in my esophagus. Doctor dilated the esophagus and prescribed Omeprazole twice a day. In two weeks I felt fine. I still have to take Omeprazole, but that's OK. Have you tried antiacids too? My doctor said that because of my history of squamous cell carcinoma, they recommend EGD in such cases. It's better to be safe than sorry.
Please, keep us updated.
Have a wonderful evening too.
Richard likes this comment
I have tried to figure the food eating thing and it seems that it does not really help. I think that I will be getting the EGD on 11/25th. I have done the 14 day omeprazole routine a couple of times. and then when I stop, it comes back. the side effects of the drug is what I don't like.... seems like it can do a real number on your liver.
Olga likes this comment
Glad to see an update from you. I like your attitude--live life as you wish. After all--it's your life and no one elses. Take care, stay well, and enjoy getting that cabin finished.
Richard, Cheryl like this comment
Woo Hoo!!! Keep on living...and writing to us about it!

Re cholesterol..the important figure is the breakdown...you may have really high reading of "HDL" good cholesterol...not related to diet so much as accidents of genes!

Happy Halloween!

Richard likes this comment
actually its the "bad" one that's really high.....but my heart and veins and arteries are doing terrific and I just don't really buy into the cholesterol thing.....I think I eat pretty good and it is what it is..
and I have my chocolate chip cookies and when I'm really really trashy....MY DORITOS Taco Bell TACOS
It's an inexact science, that's for sure...the doctors in Belgium where I lived for a time used a total figure that was much higher than that in the US...but they have to have their chocolate!
Richard likes this comment
Hi Richard, sounds like you are speaking up for what you want. I see that as a good thing.
And, you bring up a subject that I've been struggling with. I'm drinking Barium, then having radiation IVd into my veins. Doesn't soundfeel too healthy to me.
So, I've been questioning whether I want these continued tests. And, didn't get a real answer from my oncologist as to what they could do if it Did re occur.
Geez, I'm 76 years old, and have to take that into consideration, but don't think MDs are.
Janice, Richard like this comment
you and I have lived pretty good lives. so now we have to figure out how we want to live the remainder---QUALITY OF LIFE IS MOST IMPORTANT TO ME. I WILL NOT ALLOW THEM TO KEEP TAKING BITS AND PIECES OF MY BODY NOR PUMPING ME WITH MORE DRUGS IF THEY CANNOT PROMISE 100% CURE OF CANCER......this is my line. in the sand....living in a state that allows euthanasia gives me more freedom to choose..... I have always liked ur way of looking at things and I know you will make the right choice for you.
I was a little alarmed when I first read this but I'm new to all this cancer crap. It's your life and your decisions so good for you! Made me think a bit...I just finished treatment a couple months ago and have an appt with my surgeon to do the whole scope thing that I dread. I can't stand his office either but it's the only one my insurance will pay for. Maybe I'll just skip it. I do want to do my 1st scan in Dec. though. That cabin in the woods sounds amazing!
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welcome Thom to this community of those doing battle with the asshole cancer crapola.....its funny reading your bio because I took the cancer diagnosis pretty well but then again I have the V/A covering all of the bills and did not get a 2nd opinion cause I joined this blog community and very quickly realized that most everybody on here got the same treatment.....

my question was simple....if I am free of cancer and it reappears....what are my options....if its only a salvage APR....wherein they rip out your asshole---UR ACTUAL ASSHOLE---- and your rectum and part of your large intestine AND THEN give you a ostomy and still have to get a plastic surgeon to kinda remake you a non functioning asshole/buttcrack area-------....... YEA, NOT GONNA HAPPEN ON MY BODY:):).... AND THE SUCCESS RATE FOR THE APR IS LIKE 30%!!!!:(:(

END OF DAY THOM.......ASK A CRAP LOAD OF QUESTIONS AND DEMAND REAL ANSWERS AND % SUCCESS RATES. STAY POSITIVE AND DO WHAT YOU THINK IS RIGHT FOR YOU.
Good to hear from you. I think your my male "brain" doppelgänger because I feel the same way about " don't eat this, don't eat that, this causes cancer, that causes cancer"......pffft. I don't care anymore, I'll eat what I want, I'll handle Christmas lights even though "they've been known to cause cancer in the State of California". I was an only child and I get it, I can be a bit of a loner at times. The only thing I'm holding you to is that you better post a photo of yourself, standing in front of your cabin as a retiree in three years, okay? Blessings to you, Sweets.
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MARCIA..... I most sherly will! I will be standing there in the snow with bells on.....what else I have on will leave to the wind to decide:)

my goal is to be positive every single minute of every single day.... to try my hardest to do good and be good to people and esp. my two boys--Baby and Spuds, to enjoy my life and be selfish in the sense that I put my well being and happiness and that of y doggies first and formost.
and
Sweets to you with lots of blessings.
Marcia, Deborah like this comment
I hear u about the tests..I am 1 year out now and enough already with all the testing. At some point..enough is enough right?
Richard likes this comment
CORRECTO MUNDO....AND YOU SHOULD BE THE ONE WHO MAKES THAT DECISION.
Don't hold back Richard, you are not going to have any more treatment, I get it. Even Roger was saying if he knew what was in store for him he probably wouldn't have had the surgery that prolonged his life at a great cost and didn't give him much quality. He would have preferred to live a shorter period feeling much better. In your case, there is an excellent chance you are cancer free and will remain that way. Anal cancer has a much higher success rate with treatment than pancreatic cancer, with survival in the single digits at the five year mark.

BTW, don't underestimate the strength of stomach acid. It can make your mouth taste pretty bad. Thankfully it is pretty easily neutralized with medication. The best to you and your little doggies.
Richard likes this comment
thanks Deborah......have a peacefilled weekend with your family
I have a funeral to attend.
ITS STRANGE TO SAY, BUT I HAVE NEVER BEEN TO A FUNERAL....MY FUNERALS IF ONE. WAS TO CALL IT THAT IS WHEN THE VET COMES TO MY HOME AND EUTHANISES MY DOGGIE....THEN I TAKE HIM/HER TO THE CREATORIAM AND A WEEK LATER I RECEIVE THE ASHES.....CURRENTLY ON NUMBER 11.....THE GOOD THINK ABOUT SAYING YOUR GOODBYES IS THAT YOU WILL ALWAYS HAVE THE WONNERFUL MEMORIES TO FALL BACK ON....I DO NOT KNOW HOW MANY YEARS YOU BOTH WERE TOGETHER BUT I FIGURE FOR A LONG TIME AND I FIGURE MOST OF THAT LONG JOURNEY TOGETHER WAS BEAUTIFUL.
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APR....PART 2

THANKS SO SO SO SO SO SO MUCHO FOR ALL OF YOUR INPUTS EVERYBODY.

THIS IS THE QUICKEST WAY TO ANSWER ALL OF THE QUESTIONS ASKED by YOU'LL

I HAD A COLONOSCOPY LAST JUNE AND THATS WHEN THEY SAW THE CANCER AND A MONTH LATER--JULY24, 2018  I STARTED MY TREATMENTS

THEY FOUND A SUSPISIOUS POLOP AND THE LITTLE HAND CAME OUT OF THE OSCOPY TUBE AND TORE IT OFF OF THE INTESTINE...IT TESTED BENIGN.

ON TUESDAY WHEN I SAW THE COLORECTAL SURGEON, SHE SAID THAT ITS STANDARD TO HAVE A COLONOSCOPY BOUT 6 MONTHS AFTER THE TREATMENT....I GUESS THE V.A. DOES THINGS DIFFERENTLY.

THEN SHE LET ME KNOW THAT IF THE OSCOPY SEARCH COMES OUT THAT THEY FOUND CANCER...THE ONLY RECOURSE I HAVE IS....

APR!:(:(:(:(

IT MUST BE VERY RARE SOMEONE HAS IT CAUSE NO ONE HAS ANSWERED ON HERE AS HAVING HAD ONE OR KNOW OF SOMEONE WHO HAS HAD IT.

HERE IS WHAT MY GAME PLAN IS GONNA BE GALS SO LET ME KNOW WHAT YOU THINK:

I WILL TELL THE SURGEON THAT I WILL NOT DO THE COLONOSCOPY WITHOUT FIRST GETTING SEVERAL FIRST HAND ACCOUNTS FROM ACTUAL PATIENTS

THEN I WILL DECIDE TO HAVE THE PROCEDURE.

DOES ANYONE KNOW IF THE RECURRANCE OF ANAL CANCER GROWS FASTER?  I FIGURE IT TOOK 68 YEARS TO GROW IN ME SO MAYBE I CAN NOT DO THE COLONOSCOPY AND GET THRU ANOTHER 10-15 YEARS

.....BY THEN I'M 80SOMETHING AND I FIGURE ITS TIME TO GIVE IT UP

IT DOES ME NO GOOD TO HAVE THE PROCEDURE IF I AM NOT GONNA HAVE THE APR

LASTLY, WILL SHE GUARANTEE THAT THE CANCER WILL BE COMPLETELY REMOVED BY REMOVING ALL OF MY INSIDES??

I HAVE GOOGLED APR BLOGS, CHAT ROOMS, PERSONAL TESTIMONIALS TO NO SUCCESS.

YOU ALL EACH AND EVERY ONE OF YOU AND YOUR FAMILIES HAVE A SAFE AND AS WONNERFUL A WEEKEND AS POSSIBLE

richard

 

 

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So from my understanding as long as you go for your follow ups and everything is clear and the further out you get the chance for reoccurrence is slim again it all depends on the individual. When I had my initial colonoscopy they found one benign in my intestine and the other in my anal area that was cancerous. I did not have another colonoscopy until my 5 year mark which was this year and I was clear. You were the same stage as me and it sounds as if your doing what you need to do. As for reoccurrence yes I was told APR is the next step. I hope this helps
Richard likes this comment
Also it is not standard protocol to do a colonoscopy after treatment andoscopy yearly is enough unless you are having issues.. My dr is doing colonoscopies every 5 years since radiation in the pelvis region gives you a higher chance of getting rectal cancer.
Olga likes this comment
My advice- get the colonoscopy and the results. Then make a decision.
Olga likes this comment
I had full salvage APR 2 years ago, if you need one better early than late, by the time my recurrence was found the cancer had spread through the bowel wall and wrapped around my lumber sacrum.
Even after chiselling spine, they were unable to get it all, over the next year it spread to my thoracic spine T5 & T 12 my abdominal wall, my hip ( iliac bone) and lung, I had more chemo.. this time cistplatin and 5fu
By the end of the year I was told I was stage 1V and incurable... I was given 6 months to 2 years to live...
However ....
Further chemo and radiation kept pushing it back, currently.... over 2 years later! My cancer is inactive except for a small stubborn area in my lung
The price I paid for the extra chemo/ radiotherapy is chronic osteoporosis in my bones, spine, hips etc
But worth it...
So have your tests... and if you need it an Apr, the earlier they catch anything, definitely the better!
Good luck & keeping everything crossed for you
Xxx
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Okay, I must confess, I am very confused. Did your doctor find reason to think your cancer may have returned, based on your recent exam? Or is this just part of her follow-up protocol? You keep mentioning APR as if there is a suspicion that the cancer is back. My colonoscopies post-treatment were done because that's what my doctor insisted upon, not because I was having any symptoms of recurrence.
Richard, I have stage 3B anal cancer, and when they did the colonoscopy and biopsy over 2 years ago, that's when the cancer was found, then started treatment. One year later, my colo-rectal surgeon did another colonoscopy, even tho all PET's were clear and treatment successful. For 2 years post treatment, I had internal exams every 3 months and PET scans every 6 months with follow up by all 3 of my cancer doctors. Now, my next PET is 9 months out, no more colonoscopies for now and internal exam every 6 months. Better to be safe than sorry and trust your doctors or find new ones! Good luck to you!!
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Vital Info

Posts

July 10, 2018

Los Angeles, California 90005

February 6, 1951

Cancer Info

Anal Cancer

squamous cell carcionoma

June 4, 2018

Stage 2

4.1 - 5.0 cm

Negative

No

Fluorouracil (5-FU)

the fears associated with it, the unknown, the WAIT FOR THIS TO START

always learning, that its all around us....its not till it hits you that you realize how common it is

stay positive with me. stay in the now.

not as of 6/04/2018

WEST LOS ANGELES V.A. MEDICAL CENTER-WESTWOOD

during treatment.....try your hardest not to give up on your treatment.....yea- it almost felt like it was killing me but here I am

believe in yourself and/or in your beliefs/god/etc

September 5, 2018

1st MRI NOV. 5 2018--NO SIGN OF TUMER/GROWTH....2ND MRI--NO SIGN OF TUMER/GROWTH

a week after having completed my PSA and urine tests(5/22/18), i noticed blood in the toilet and completed the F.I.T--fecal immunochemical test.... I forgot to mail it in and drove to the VA and had them give me another one, did it and that afternoon i returned it...two days later i received a call to schedule a colonoscopy for June 04, 2018. results came back positive for a ployp that was excised and also a 4-5cm malignant growth on the dentate line of the anus--right smack in/around my spinchter muscle. T3N0M0...prognosis seems to be really good as it has not traveled nor gone into nodes. scheduled to start chemo/radiation with 5-FU and mitomyacin first 4 days and last 4 days using a PICC line.

AM NOT USING THE 5-FU....INSTEAD ITS CAPECITABINE 500MG

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