Richard's Cancer Blog

2 YEARS 2 DAYS ASSHOLE cancer FREE!!!!

SOME UPDATES.....

SEPT 5 2018 WAS MY LAST DAY OF CHEMO/RADIATION- FEELING REALLY GOOD, STILL CANNOT EAT ICE CREAM BUT CAN EAT BEANS---GOTTA HAVE MY BEAN BURITTOS!

2 MONTHS AGO I LOST MY POSITION OF BLDG MGR FOR OUR COMMERICAL BLDG---ITS BASICALLY EMPTY BECAUSE HALF OF THE TENANTS COULD NOT AFFORT THE RENTS DURING COVID AND THE OTHER HALV ARE ALL WORKING FROM HOME.

THAT WAS LIKE 1/4 OF MY INCOME.

NOW THERE IS TALK THAT MAYBE MY RESIDENTIAL BUILDINGS WILL BE NEXT....NOT COVID RELATED, JUST OWNERS BITCH FIGHTING RELATED---ITS WHO BECOMES THE FAT BILLIONAIRE AND SITS ON THE OTHER TWO!

ME AND THE KIDS-BABY AND SPUDS ARE UP IN IDYLLWILD FOR 15 WONNERFUL DAYS.

ON NOV 16TH, I HAVE A COLONOSCOPY--DR. CHANG, MY RAD. DR THOUGHT IT WOULD BE GOOD TO CLEAR THE AIR.

AS I ALWAYS SAY---AS LONG AS I HAVE MY HEALTH, MY KIDS, A FEW PENNIES IN MY POCKETS AND A ROOF OVER OUR HEADS---LIFE IS GRAND!:):):)

WISHING ALL MY FRIENDS ON HERE A FANTASTICO LABOR DAY

richard cadena

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4 people sent you a hug.
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Hard to believe it has been 2 years! So happy for you! Sorry to hear you have lost so much of your income.
Two years is a huge milestone! Congratulations! Sorry about your job situation, but you have a great outlook and that will see you through to more opportunities. Take good care, enjoy your hiatus/vacation, and keep celebrating those anniversaries!
Those two years have gone by so quickly! Well done that you are free of the C. May it continue. Sorry about the work situation, as you say as long as you have a roof over your head....
Congratulations! Sux about the income tho, but keep that positive outlook, something will turn up. Enjoy those two weeks!
Hi Richard, thank you for this news, and your upbeat spirit despite the financial problems!

I hope your doctor is not proposing the colonoscopy as a checkup on the cancer? A simple anoscopy can do that. A colonoscopy is way more invasive and can be pretty rough. IF you have never had one, then yeah, go ahead just to "clear the air!" And read this piece by Dave Barry: https://bussorah.wordpress.com/2011/03/01/dave-barrys-colonoscopy/
I like you attitude, Richard! And congrats, my how time flies; so glad that you have your health, shelter, family, and few pennies (hopefully the other stuff will workout).. enjoy yourself!
2 years? my gosh time went fast.
I hope the income situation gets back to normal soon.
I'm so glad, you are feeling well!
Hugs
I'm glad you're feeling well Richard. I'm sorry about your the income loss but appreciate your attitude. As long as you and the kids have each other, it's good. I hope the income comes back to you tenfold when things return and the panic is over. Stay well. 😘
Hi Richard,
Yes, we must be thankful for blessings big or small. This Covid induced plunge in the economy is heartbreaking. So sad to see so many people who lost their jobs, their businesses, and their homes. You have the love of your family which is wonderful. Enjoy your vacation and congrats on being NED.
Your news is good to hear. I remember your treatment stories well. Your outcome is what everyone hopes for. Sorry about the income flap, but we are about the same age. Maybe retirement is in the air. Kiss those babies for me.
Hi Richard...missed this posting when posted, glad to see your attitude hasn't changed. Sorry about the income loss, hoping it isn't raising you too much stress.
I've learned that eating peanut butter for dinner is better than having a Stressful job. After all we here have been through, life is seen through a different lens. Gratefulness rules!
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P.S. Requesting clarification as to whether your reference to Asshole is to be attributed to yourself as a person or a part of your body. Requested here by Anal Nurse.😊
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YOU WOULD OF THOUGHT I HAD HAND/FINGER CANCER

CAUSE I HAVEN'T WRITTEN ANYTHING FOR LIKE MONTHS..... HEARING ABOUT DEBORAH'S HUBBY LEAVING THIS EARTH JOLTED ME BACK.....

JUST SO EVERYBODY KNOWS---I'M NOT MUCH OF A STICKER WITH MY FELLOW HUMANS---JUST ASK THOSE THAT ARE BLOOD RELATED.....

HELL---ASK MY FRIENDS!

ITS MY DOGGIES AND ME.

 

ANYWHO.....

ITS 14 MONTHS FREE AND COUNTING.

I SAID NO TO ANY COLONOSCOPY

NO TO APR

NO TO SEEING MY CHEMO DR FOR A WHILE AT LEAST....I'D GO IN AND VISIT FOR LIKE 5 MINUTES AND THEN I'M OUT THE DOOR...WASTE OF TIME

ANYWAY....AS I BELIEVE I STATED A WHILE BACK IF THE ASSHOLE CANCER COMES BACK....IT COMES BACK...I APPLY FOR CALIFORNIA EUTHANSIA DRUG PROTOCOL AND TRY AND GET THE MEDS AND GO FROM THERE.

I AM LIVING EVERYDAY KNOWING THAT I AM CANCER FREE

STILL NOT TOO SURE IF I STILL WANNA CONTINUE TO DO THE MRI/CAT/DOG/PET SCAN THINGS.

MY GOAL IS TO. FINISH MY CABIN, WORK ANOTHER 3 YEARS, PAY THE CABIN OFF AND RETIRE.

JUST REMEMBERED..... I HAVE BEEN HAVING SOME ISSUES WITH "HEART BURN"/"ACID REFLUX"/WHATEVER IT IS....THE DR THOUGHT IT WAS A HEART ATTACK SO I HAD TO TAKE 4 TESTS AND TURNS OUT ALL OF THE HEART DO MA HICKIES ARE DOING PURDY DARNED FANTASTICO CONSIDERING MY CHOLOESTROL IS LIKE 265.....BUT THEN AGAIN, I DON'T GIVE A RATS PETUNIA AS I DON'T BELIEVE IN THE CHOLOESTROL HOOPLE.

WILL SEE A THROAT/GASTROINTESTIONAL PERSON NOV 25TH.

I HAVE BEEN GETTING THESE TERRIBLE POOP SMELLS COMING FROM MY THROAT EVERY ONCE IN A WHILE...ESP WHEN I FEEL THE BURN....

ANY IDEAS KIDS?????

lastly, i read your posting like once a week when i go thru my yahoo emails.

you gals and a few guys on here.... i do think about you, just feel overwhelmed sometimes until something like hearing someone dying that jerks me back into the fold.

wishing all a wonnerful and peacefilled evening.

richard

 

Olga, Els sent you a hug.
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Thank you for your updates, Richard. I was thinking about you. You know better than any one what you need in your life. Living in a cabin with your dogs sounds amazing. Talking about your heartburn and that bad smell, do you have these symptoms after you eat specific food? It could be. My heartburn symptoms were different. Actually I did not have a heartburn at all, it was silent. In the beginning of March I started to have swallowing problems that lasted for a few months. EGD showed severe erosion, swelling, hiatal hernia, and an ulcer in my esophagus. Doctor dilated the esophagus and prescribed Omeprazole twice a day. In two weeks I felt fine. I still have to take Omeprazole, but that's OK. Have you tried antiacids too? My doctor said that because of my history of squamous cell carcinoma, they recommend EGD in such cases. It's better to be safe than sorry.
Please, keep us updated.
Have a wonderful evening too.
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I have tried to figure the food eating thing and it seems that it does not really help. I think that I will be getting the EGD on 11/25th. I have done the 14 day omeprazole routine a couple of times. and then when I stop, it comes back. the side effects of the drug is what I don't like.... seems like it can do a real number on your liver.
Olga likes this comment
Glad to see an update from you. I like your attitude--live life as you wish. After all--it's your life and no one elses. Take care, stay well, and enjoy getting that cabin finished.
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Woo Hoo!!! Keep on living...and writing to us about it!

Re cholesterol..the important figure is the breakdown...you may have really high reading of "HDL" good cholesterol...not related to diet so much as accidents of genes!

Happy Halloween!

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actually its the "bad" one that's really high.....but my heart and veins and arteries are doing terrific and I just don't really buy into the cholesterol thing.....I think I eat pretty good and it is what it is..
and I have my chocolate chip cookies and when I'm really really trashy....MY DORITOS Taco Bell TACOS
It's an inexact science, that's for sure...the doctors in Belgium where I lived for a time used a total figure that was much higher than that in the US...but they have to have their chocolate!
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Hi Richard, sounds like you are speaking up for what you want. I see that as a good thing.
And, you bring up a subject that I've been struggling with. I'm drinking Barium, then having radiation IVd into my veins. Doesn't soundfeel too healthy to me.
So, I've been questioning whether I want these continued tests. And, didn't get a real answer from my oncologist as to what they could do if it Did re occur.
Geez, I'm 76 years old, and have to take that into consideration, but don't think MDs are.
Janice, Richard like this comment
you and I have lived pretty good lives. so now we have to figure out how we want to live the remainder---QUALITY OF LIFE IS MOST IMPORTANT TO ME. I WILL NOT ALLOW THEM TO KEEP TAKING BITS AND PIECES OF MY BODY NOR PUMPING ME WITH MORE DRUGS IF THEY CANNOT PROMISE 100% CURE OF CANCER......this is my line. in the sand....living in a state that allows euthanasia gives me more freedom to choose..... I have always liked ur way of looking at things and I know you will make the right choice for you.
I was a little alarmed when I first read this but I'm new to all this cancer crap. It's your life and your decisions so good for you! Made me think a bit...I just finished treatment a couple months ago and have an appt with my surgeon to do the whole scope thing that I dread. I can't stand his office either but it's the only one my insurance will pay for. Maybe I'll just skip it. I do want to do my 1st scan in Dec. though. That cabin in the woods sounds amazing!
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welcome Thom to this community of those doing battle with the asshole cancer crapola.....its funny reading your bio because I took the cancer diagnosis pretty well but then again I have the V/A covering all of the bills and did not get a 2nd opinion cause I joined this blog community and very quickly realized that most everybody on here got the same treatment.....

my question was simple....if I am free of cancer and it reappears....what are my options....if its only a salvage APR....wherein they rip out your asshole---UR ACTUAL ASSHOLE---- and your rectum and part of your large intestine AND THEN give you a ostomy and still have to get a plastic surgeon to kinda remake you a non functioning asshole/buttcrack area-------....... YEA, NOT GONNA HAPPEN ON MY BODY:):).... AND THE SUCCESS RATE FOR THE APR IS LIKE 30%!!!!:(:(

END OF DAY THOM.......ASK A CRAP LOAD OF QUESTIONS AND DEMAND REAL ANSWERS AND % SUCCESS RATES. STAY POSITIVE AND DO WHAT YOU THINK IS RIGHT FOR YOU.
Good to hear from you. I think your my male "brain" doppelgänger because I feel the same way about " don't eat this, don't eat that, this causes cancer, that causes cancer"......pffft. I don't care anymore, I'll eat what I want, I'll handle Christmas lights even though "they've been known to cause cancer in the State of California". I was an only child and I get it, I can be a bit of a loner at times. The only thing I'm holding you to is that you better post a photo of yourself, standing in front of your cabin as a retiree in three years, okay? Blessings to you, Sweets.
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MARCIA..... I most sherly will! I will be standing there in the snow with bells on.....what else I have on will leave to the wind to decide:)

my goal is to be positive every single minute of every single day.... to try my hardest to do good and be good to people and esp. my two boys--Baby and Spuds, to enjoy my life and be selfish in the sense that I put my well being and happiness and that of y doggies first and formost.
and
Sweets to you with lots of blessings.
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I hear u about the tests..I am 1 year out now and enough already with all the testing. At some point..enough is enough right?
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CORRECTO MUNDO....AND YOU SHOULD BE THE ONE WHO MAKES THAT DECISION.
Don't hold back Richard, you are not going to have any more treatment, I get it. Even Roger was saying if he knew what was in store for him he probably wouldn't have had the surgery that prolonged his life at a great cost and didn't give him much quality. He would have preferred to live a shorter period feeling much better. In your case, there is an excellent chance you are cancer free and will remain that way. Anal cancer has a much higher success rate with treatment than pancreatic cancer, with survival in the single digits at the five year mark.

BTW, don't underestimate the strength of stomach acid. It can make your mouth taste pretty bad. Thankfully it is pretty easily neutralized with medication. The best to you and your little doggies.
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thanks Deborah......have a peacefilled weekend with your family
I have a funeral to attend.
ITS STRANGE TO SAY, BUT I HAVE NEVER BEEN TO A FUNERAL....MY FUNERALS IF ONE. WAS TO CALL IT THAT IS WHEN THE VET COMES TO MY HOME AND EUTHANISES MY DOGGIE....THEN I TAKE HIM/HER TO THE CREATORIAM AND A WEEK LATER I RECEIVE THE ASHES.....CURRENTLY ON NUMBER 11.....THE GOOD THINK ABOUT SAYING YOUR GOODBYES IS THAT YOU WILL ALWAYS HAVE THE WONNERFUL MEMORIES TO FALL BACK ON....I DO NOT KNOW HOW MANY YEARS YOU BOTH WERE TOGETHER BUT I FIGURE FOR A LONG TIME AND I FIGURE MOST OF THAT LONG JOURNEY TOGETHER WAS BEAUTIFUL.
Hi Richard! Maybe you already found out what is the problem with the poop smells, but just in case..My mom had is for a couple of years and it turned out to be a bad working stomach valve, for which she received medication. It worked but it took a bit of time and the poop smell went away. She was enormously relieved. Its the rfelux with the bad working valve that works up stuff (1st phase poop) from the small intestent.
Hope this was helpfull. I might find out whih medications she took, she died a few months ago so I can't ask her..

As for the rest of what you tell us..I can relate to what you say.
On the website of anal cancer foundation they talk about when APR is recommended: reoccurrent cancer after treatment with chemo and radiation. They also have info on what it is like and side effects.
I know somebody who opted for it in stead of the regular treatment, i meet him in the sauna, so I can tell you that he looks very normal on the outside, except for the ostomy. He says it is easy to clean and he just had his 5 year clean! I think a lot has to do with how we carry it.
I am a bit llike you, I might have re-occurrence now, I am waiting for the verdict, but i just think all the time: what if I do nothing? What if I just say goodbye to all thsi hardship and let nature has its course... would'nt it also be possible to heal? has it ever happene? And where can I find those people for inspiration?
My surroundings (my two dogs have died a great loss!) keep on telling me: did you see the doc? When is your appointment? because they know me a bit. I like the great escape. And of course...it is my decision. They tell me I am afraid. Of course I am. And yes, fear can be too big.
I just live alone...although I have friends and family, I have no children and my house is not extremely convenient bcause I live on one floor of the building and sleep on another. (long story)

I hope i understand a bit of what you are trying to say. I thoink the imprtance is that the choice is clear for you, whatever it is. And that it gives you some peace. Nobody can look completely into your heart (except your dogs maybe) so it's up to you. But please do not stick your head in the sand, and keeep on doing the barable things that can help preventing things.
haha i believe I am talking to myself here.
Richard, hope to hear more fom you and be sure that there are also people close to you who love you, even though you act like a hermit!
all the best



good morning Els, sorry to hear bout ur mom....did she die of the acid stuff or just like old age?

its funny ur writing this yesterday cause this Wednesday I have my endoscopy to finally try and figure out the acid crapola.

really nice to hear a 1st hand account from an ostomy patient. if u see him again, ask him how his recuperation went with the surgery that had to be done to redo his booty.....I'm thinking u prob know him good enough to ask:)?

I had a fantastico talk with my rad oncologist and he is willing to find a patient that had the APR done and is willing to talk about it if I was to decide to have it cause the idiot "c" came back.

so I have scheduled a colonoscopy for this coming June and we shall go from there.....my doc tells me that I have like a 3% chance of reoccurrence cause he zapped the crap out of it like fiercely with a few extra rays.

after 25 years of not having seen my relatives, they came up to visit bout 2 weeks ago for 3 days and as always I played the overenthuastic hostess and dragged them from here to everywhere!!! they saw a lot of s.cali in those 3 cram packed days.

and once they left I breathed a huge sigh of relief because this is what I do when I entertain....I either do nothing or completely go overboard.....and now I remember why I decided to go my own route with my two boys-Baby and Spud!!!

I am nowhere close to being a hermit cause I have approx. 225 "kids"(apartment tenants) that give me plenty of interaction in addition to another 75 or so at my commercial bldg....when I get home at nite, I am fantascically happy for the solitude that I have.

this last xmas, I and the boys spent 15 days at our cabin and because we kinda got snowed in, it allowed me to do absolutely nothing but be with my 2 doggies and binge watch the tele and eat like a ravenous piggy----ti was the most relaxing vaca I have ever had....did not do one iota of work around the cabin.

I think when its all said and done---by nurture or nature or combo---I just enjoy the company of my two boys and myself.....no other obligations needed or wanted

I hope ur solitude is per your wants and not imposed on you because of circumstances.:):)

hoping u have a wonnerful and safe weekend

Richard
Hi Richard, Thanks for your sympathy, I miss her greatly and dearly. She did not die from the reflux thing, the valve, it was a minor thing really that needed to be dealt with. It was solved in fact. She died of parkinsons, that was awful, cause she had also lewybody.(parkinsons dementia). I took care of her untill the end but it was tough, very tough. I moved back to holland from spain to be with her, which also resulted in divorce. I lost my husband, home, my dogs, my health and finally my mom...which make me also glad to sit on the sofa in heavenly peace..in order to recover from what now feels in retro like an ongoing earthquake.

Thanks! Nobody ever wished me a safe weekend, don't know really what you mean by it :-)) but wonderful is clear enough.

I am surprised to hear that you are willing to take the endoscopy..you sound so confident and sure written in capitals. Glad to hear. You seems to be able to express yourself fully and then see what happens next. A good thing, which I would like to posess more of..
I am not a hermit, I am more of a nomad, seem to be unable to find where I belong. after 55 years of living that is really unusual and is responsable for the fact that I live the way I live. Even with my husband we were most of the time on the road, along with the dogs.

Your cabin looks very nice! I got snowed in once in France the same way. The shed was complete gone. No more roads and signs and the large bushes were the top of trees! Wonderful. Dogs liked it as well. WE were luckily able to dig us out for strolling. Unreal it was.

Why are you preparing so much for when the C might come back? Is there any reason for it? I must admit that when I read your posts I get confused..but I made op my mind that the cancer is still gone but you want to be prepared for it just in case. Am I right?
I will ask the guy when I see him, but he is no friend, i just meet him at the sauna by chance. But I remeber he found it easy compared to what he thought was radiation and chemo hell. Her went straight for the APR also to stop all the anxiety and endoscopies etc etc. He was content. Finally i think whatever decision made, we tend to be content with it in the end, because its ours. But being well informed is important i guess, like wanting to speak to somebody who has experienced it. I hope you will let us know!

have a safe weekend too and goodluck with all those 'kids'

how did your relatives like the visit? maybe the were in the eye of the activity tornado? all relaxed and fine? I have no clue what it is like to see relatives after such a long time.

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Vital Info

Posts

July 10, 2018

Los Angeles, California 90005

February 6, 1951

Cancer Info

Anal Cancer

squamous cell carcionoma

June 4, 2018

Stage 2

4.1 - 5.0 cm

Negative

No

Fluorouracil (5-FU)

the fears associated with it, the unknown, the WAIT FOR THIS TO START

always learning, that its all around us....its not till it hits you that you realize how common it is

stay positive with me. stay in the now.

not as of 6/04/2018

WEST LOS ANGELES V.A. MEDICAL CENTER-WESTWOOD

during treatment.....try your hardest not to give up on your treatment.....yea- it almost felt like it was killing me but here I am

believe in yourself and/or in your beliefs/god/etc

September 5, 2018

1st MRI NOV. 5 2018--NO SIGN OF TUMER/GROWTH....2ND MRI--NO SIGN OF TUMER/GROWTH

a week after having completed my PSA and urine tests(5/22/18), i noticed blood in the toilet and completed the F.I.T--fecal immunochemical test.... I forgot to mail it in and drove to the VA and had them give me another one, did it and that afternoon i returned it...two days later i received a call to schedule a colonoscopy for June 04, 2018. results came back positive for a ployp that was excised and also a 4-5cm malignant growth on the dentate line of the anus--right smack in/around my spinchter muscle. T3N0M0...prognosis seems to be really good as it has not traveled nor gone into nodes. scheduled to start chemo/radiation with 5-FU and mitomyacin first 4 days and last 4 days using a PICC line.

AM NOT USING THE 5-FU....INSTEAD ITS CAPECITABINE 500MG

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