WHERE ARE ALL THE MENS????

MAYBE I'M JUST NOT LOOKING WELL ENOUGH BUT IT SEEMS THAT THE GREAT MAJORITY OF ANAL CANCER VICTIMS ARE WOMEN.

ARE MEN JUST TOO SHY TO BE ON THIS SITE?

ALSO, IF WOMEN CAN GET CHECKED FOR THE HPV VIRUS..... WHY ARE THEY IN THE MAJORITY ON THIS BLOG SITE

ALSO, WHY IS IT THAT IT SEEMS THAT THE HPV VIRUS CANNOT BE DETECTED IN MEN?

I GOTTA HAND IT TO THE LADIES ON HERE..... U GALS WERE PURDY DANGED MACHO TO HAVE FOUGHT AND GONE THRU THE EXTREME PAIN, MISERY, ETC, ETC THAT CANCER TREATMENT PUT YOU ALL THRU.

NEVER LET IT BE SAID THAT WOMEN FOLK ARE NOT TOUGH BASTARDS!:)

Janice sent you a hug.
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There are men on here but yes statistically there are way more women than men that get anal cancer. All the medical literature confirms more women than men get anal caner.

Men are not checked for HPV because men in general don't want to admit someone has ejaculated in their ass and are afraid of anal exams even if it's just a simple finger. Women don't necessarily get it from anal sex, fluids just tend to leak and run all about their nether region due to gravity. HPV will take up residence in any moist viable tissue it encounters. Not to mention it's not out of the question for HPV to move internally from a vagina to a rectum through a lymph connection or other internal highway.

Because the medical community has for so long turned a blind eye on gay sex nobody has done enough medical trials to prove that testing (anal equivalent of a pap smear) is worth the time and effort in men. Hopefully some of that will change as more men are out of the closet. There has also been a rise in HPV related throat cancers in men that I would say is probably attributable to the rise in gay sex acceptance. Plenty of guys that will do oral but don't progress further.

The medical community was also slow in deciding that boys should be HPV vaccinated as well as girls. In countries where both sexes are vaccinated routinely HPV rates have fallen drastically along with the associated cancers caused by HPV. If everyone were vaccinated at a young age we could basically wipe out the main cancer inducing HPV variants. Women would be happy if everyone was fully vaccinated because PAP smears would likely become an only as needed test instead of the painfully routine test it is now.

Women are indeed very tough. They have the pain of childbirth, mammograms, pap smears. I can tell you if you did that to man you'd never here the end of his bitching and moaning.
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Anal cancer is caused by skin to skin contact. Not anal sex. I’ve never had anal sex. Unfortunately the stigma of “that’s how you get it” silences so many. Men are the vector and have little to no symptoms when they are HPV infected. The best thing we can do is educate and immunize the next generation when they are 11-12 years old, so they don’t have to be us.
I think you're right Rick. My friend Harry was a very early casualty of AIDS, he was dx'ed in summer 1985 and died April 1986. There was absolutely nothing for him, just a lot of guessing game medication. When they realized that it wasn't strictly a gay man's disease and anyone could get it, even babies in utero, that's when they went full speed ahead on research.
Richard likes this comment
I use to work in the surgery department and scheduled annual dysplasia checks (HRA) 60min exam probably the last 12 years, for all gay men; and just as I retired (maybe because of me) they decided to alert woman who confirmed anal sex, to have them; shortly after I left; they decided all woman should be tested with HPV; many of us have never had anal sex nor HPV, but got AC anyway.

Also, I found that my own surgeon was telling one of his gay patients to have the HPV shot even after he had HPV (symptomatic, unusual); but he didn't encourage me to have it. The last Hpv convention, they were talking about having everyone, including us, get the shots. That would be somewhat relieving; even if it was a trial.
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10% of people with this diagnosis don't have HPV.
Carol likes this comment
SOUNDS VERY INTERESTING....JUST THE THOUGHT THAT THE MEDICAL COMMUNITY AND THE GOV KNOW ABOUT THIS VIRUS AND YET IT JUST DOESNT SEEM TO MOTIVATE THEM TO DO MORE.
Right, but for many of us, we got it before there was a test for it; then it disappeared.
I think they can find out from biopsy of the tumor.
bUT we might never know...
I am one of them.
You are one of the what Carol?
if it's suspect HPR not positive but suspect you had it; I am also.
Hmmm??yes ur right. These are good contemplation. Have to agree..us women here are pretty darn courageous and tenacious.
Cheryl likes this comment
It's not like it's through/done. too much damage.

They're are more women that get this than men in statistics.

I was told, in Seattle, there is a very organized community of AC mens support groups. It's different for the 2 sexes, so in this way they don't want women in the group. Just like women want to hear from women on the over all target zone damage. Guess what Rich; we have different body parts (effected).😉😜
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I GUESS UR CORRECT....NEVER HAVE SEEN ONE OF THEM(DIFF BODY PARTS) UP CLOSE AND PERSONAL...... THE STORY I WAS TOLD IS THAT MY DAD WAS RUSHING MY MOM INTO THE EMERGENCY ENTRANCE OF THE HOSPITAL AS THE DAM HAD BURST AND THOUSANDS OF LIVES WERE LOST IN THE INSUING FLOOD....ANYWHO..... AS THEY REACHED THE RECEPTION DESK, I SLID OUT OF THE CAVERN I WAS SWIMMING IN FOR THE LAST 9 MONTHS AND LANDED ON MY HEAD.... I LOOKED UP AND SAW WHERE I HAD JUST COME FROM....GOT UP ON ALL FOURS AND CRAWLED THE FASTEST 50 YARD DASH IN RECORDED HISTORY.....AND THATS HOW I BECAME GAY!!!!!!!
Marcia, Vjfines like this comment
That's ok Rick; I don't even like looking at my own. I avoid the bathroom mirror on my way into the shower😱
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Best to think better of yourself.
I have been on a support network for several years. Many of the anal cancer patients are men, but I have never talked to one...always wife or friend calling on his behalf...think guys just have a horrible time talking about this cancer.
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AS YOU AND OTHERS HAVE NOTED, I DO NOT HAVE THAT PROBLEMO..... DON'T KNOW IF ITS MACHISMO OR FEAR THAT OTHERS WILL SEE THEM AS GAY OR WHATNOT....UNFORTUNATELY, BY THE TIME MEN FIGURE IT OUT AND FORSE THEMSELVES TO THE DOC, IT CAN BE TOO LATE.

I BLED, A COUPLE DAYS LATER I DROVE TO THE V.A. AND GOT THE FECAL TEST AND A COUPLE OF DAYS LATER I WAS SCHEDULED FOR A COLONOSCOPY AND WITHIN LIKE 3 WEEKS THE TREATMENTS STARTED.

I STILL HAVE MY CERTIFICATE FOR MOST CLEAN PIPES.
Helen Marshall, Vjfines like this comment
Thank you! I'll take that as a compliment! Yes, women are tough!


As for the nuumbers, many more women get anal cancer than men. You might find this website interesting.


https://seer.cancer.gov/statfacts/html/anus.html
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BUT WHY ESPECIALLY SINCE YOU ALL CAN GET TESTED AND I GUESS EVEN GET SHOTS FOR IT....JUST CONFUSED
Thanks for the link! Got to update my website.
Smurf likes this comment
HPV in anal cancer has a very long dormancy - in decades. Most likely we women were exposed to HPV 20-30 years ago, when there weren't tests for HPV, just cervical pap smears. Only when you continued to get abnormal pap smears, intervention was needed. So it's likely that is the case for the majority here - exposed to HPV decades ago and were not able to clear it from our bodies so it decided to hide and wait to rear it's ugly head. The HPV test for OB/GYN exams was only introduced in 2007 and since they only swab the vaginal area, most of us were probably HPV negative in that region. OB/GYN exams only exams the vaginal area, although some docs routinely do DREs as well. Mine did not until I asked her about the bleeding issues I was having, which the first time I ever had anything in my ass. Now I clearly see the benefit of DREs. Did you see my post about Marcia Cross on CBSThisMorning? Toward the end of the segment a question is asked about which doctor should do DREs as it is not clear. Would love to get your opinion on the video clip. Check it out.
D
Smurf, Vjfines like this comment
I honestly don't understand what those who decide what the guidelines are for routine gyno exams were/are thinking when they decided that DRE's no longer needed to be included. A few years ago, it was decided that pap smears only needed to be done every 3 years. At this year's gyno exam, my doctor told me that pap smears are no longer recommended once a woman turns 65. All of this is quite concerning to me, given the fact that HPV-related cancers continue to be on the rise. It's an equation that just doesn't make sense.
Mary likes this comment
The Americn Cancer Society removal of the recommendation for an annual DRE is a mystery. When I saw that it was no longer on the site I wrote to them and got some insulting babble in return as to how we "can't test for everything," and it's an unnecessary expense, etc...infuriating. Stopped donating to them..Meantime I just learned that the pap smear was stopped in December 2017 in Australia...and replaced by an HPV test!!
Smurf likes this comment
Daisy, I just learned about this interview and will be commenting. Thanks!
I am happy to say that even though they decided DREs are (or were) no longer needed during GYN exams, my doctor did not agree and continued to do them. In fact, she was the doctor who found the suspicious BUMP which resulted in a colonoscopy, a biopsy and ultimately my treatment! I thank God for my female GYN!
Helen Marshall, Vjfines like this comment
Mary - you are lucky that you have a GYN doctor who still does this! Justine Almadad from the HPV and Anal Cancer Foundation is looking for doctors who support DREs and more frequent pap smears in order to have national guidelines changed. So it would be great if your doctor would be willing to talk to her! I'm asking my doc to contact here.
D
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daisy, I have made a note of this and will contact my doctor and ask her to do that.
While I was traveling I saw a reference in a news article that indicated Australia (ah, those national health systems!) switched from the Pap smear to a cervical HPV test in December 2017 and results very encouraging...much better detection of early problems...
Daisy, Smurf like this comment
Richard,
When I first joined this site in FEB or March 2011, there were a lot of men with anal cancer dx. Sadly, most, if not all of them, have since died. At least three I know of, were also HIV positive, so that was a double" whammy" for them.
I miss them a lot, as I liked them a lot.
Even though most of us never actually meet in person, a lot of us have become very close..as someone said, nothing here is "TMI."
Maybe, some afflicted guys aren't aware of this blog?
Hugs!!
Carol
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this blog is a fantastic way to talk, ask, cry, enjoy, laugh and say whatever strikes our fancy..... it gives us the freedom to NOT-TMI and just let it all hang out. you gals on here are great.
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Vital Info

Posts

July 10, 2018

Los Angeles, California 90005

February 6, 1951

Cancer Info

Anal Cancer

squamous cell carcionoma

June 4, 2018

Stage 2

4.1 - 5.0 cm

Negative

No

Fluorouracil (5-FU)

the fears associated with it, the unknown, the WAIT FOR THIS TO START

always learning, that its all around us....its not till it hits you that you realize how common it is

stay positive with me. stay in the now.

not as of 6/04/2018

WEST LOS ANGELES V.A. MEDICAL CENTER-WESTWOOD

during treatment.....try your hardest not to give up on your treatment.....yea- it almost felt like it was killing me but here I am

believe in yourself and/or in your beliefs/god/etc

September 5

1st MRI NOV. 5 2018--NO SIGN OF TUMER/GROWTH....2ND MRI--NO SIGN OF TUMER/GROWTH

a week after having completed my PSA and urine tests(5/22/18), i noticed blood in the toilet and completed the F.I.T--fecal immunochemical test.... I forgot to mail it in and drove to the VA and had them give me another one, did it and that afternoon i returned it...two days later i received a call to schedule a colonoscopy for June 04, 2018. results came back positive for a ployp that was excised and also a 4-5cm malignant growth on the dentate line of the anus--right smack in/around my spinchter muscle. T3N0M0...prognosis seems to be really good as it has not traveled nor gone into nodes. scheduled to start chemo/radiation with 5-FU and mitomyacin first 4 days and last 4 days using a PICC line.

AM NOT USING THE 5-FU....INSTEAD ITS CAPECITABINE 500MG

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