APR....PART 2

THANKS SO SO SO SO SO SO MUCHO FOR ALL OF YOUR INPUTS EVERYBODY.

THIS IS THE QUICKEST WAY TO ANSWER ALL OF THE QUESTIONS ASKED by YOU'LL

I HAD A COLONOSCOPY LAST JUNE AND THATS WHEN THEY SAW THE CANCER AND A MONTH LATER--JULY24, 2018  I STARTED MY TREATMENTS

THEY FOUND A SUSPISIOUS POLOP AND THE LITTLE HAND CAME OUT OF THE OSCOPY TUBE AND TORE IT OFF OF THE INTESTINE...IT TESTED BENIGN.

ON TUESDAY WHEN I SAW THE COLORECTAL SURGEON, SHE SAID THAT ITS STANDARD TO HAVE A COLONOSCOPY BOUT 6 MONTHS AFTER THE TREATMENT....I GUESS THE V.A. DOES THINGS DIFFERENTLY.

THEN SHE LET ME KNOW THAT IF THE OSCOPY SEARCH COMES OUT THAT THEY FOUND CANCER...THE ONLY RECOURSE I HAVE IS....

APR!:(:(:(:(

IT MUST BE VERY RARE SOMEONE HAS IT CAUSE NO ONE HAS ANSWERED ON HERE AS HAVING HAD ONE OR KNOW OF SOMEONE WHO HAS HAD IT.

HERE IS WHAT MY GAME PLAN IS GONNA BE GALS SO LET ME KNOW WHAT YOU THINK:

I WILL TELL THE SURGEON THAT I WILL NOT DO THE COLONOSCOPY WITHOUT FIRST GETTING SEVERAL FIRST HAND ACCOUNTS FROM ACTUAL PATIENTS

THEN I WILL DECIDE TO HAVE THE PROCEDURE.

DOES ANYONE KNOW IF THE RECURRANCE OF ANAL CANCER GROWS FASTER?  I FIGURE IT TOOK 68 YEARS TO GROW IN ME SO MAYBE I CAN NOT DO THE COLONOSCOPY AND GET THRU ANOTHER 10-15 YEARS

.....BY THEN I'M 80SOMETHING AND I FIGURE ITS TIME TO GIVE IT UP

IT DOES ME NO GOOD TO HAVE THE PROCEDURE IF I AM NOT GONNA HAVE THE APR

LASTLY, WILL SHE GUARANTEE THAT THE CANCER WILL BE COMPLETELY REMOVED BY REMOVING ALL OF MY INSIDES??

I HAVE GOOGLED APR BLOGS, CHAT ROOMS, PERSONAL TESTIMONIALS TO NO SUCCESS.

YOU ALL EACH AND EVERY ONE OF YOU AND YOUR FAMILIES HAVE A SAFE AND AS WONNERFUL A WEEKEND AS POSSIBLE

richard

 

 

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So from my understanding as long as you go for your follow ups and everything is clear and the further out you get the chance for reoccurrence is slim again it all depends on the individual. When I had my initial colonoscopy they found one benign in my intestine and the other in my anal area that was cancerous. I did not have another colonoscopy until my 5 year mark which was this year and I was clear. You were the same stage as me and it sounds as if your doing what you need to do. As for reoccurrence yes I was told APR is the next step. I hope this helps
Richard likes this comment
Also it is not standard protocol to do a colonoscopy after treatment andoscopy yearly is enough unless you are having issues.. My dr is doing colonoscopies every 5 years since radiation in the pelvis region gives you a higher chance of getting rectal cancer.
Olga likes this comment
My advice- get the colonoscopy and the results. Then make a decision.
Olga likes this comment
I had full salvage APR 2 years ago, if you need one better early than late, by the time my recurrence was found the cancer had spread through the bowel wall and wrapped around my lumber sacrum.
Even after chiselling spine, they were unable to get it all, over the next year it spread to my thoracic spine T5 & T 12 my abdominal wall, my hip ( iliac bone) and lung, I had more chemo.. this time cistplatin and 5fu
By the end of the year I was told I was stage 1V and incurable... I was given 6 months to 2 years to live...
However ....
Further chemo and radiation kept pushing it back, currently.... over 2 years later! My cancer is inactive except for a small stubborn area in my lung
The price I paid for the extra chemo/ radiotherapy is chronic osteoporosis in my bones, spine, hips etc
But worth it...
So have your tests... and if you need it an Apr, the earlier they catch anything, definitely the better!
Good luck & keeping everything crossed for you
Xxx
3 people like this comment
Okay, I must confess, I am very confused. Did your doctor find reason to think your cancer may have returned, based on your recent exam? Or is this just part of her follow-up protocol? You keep mentioning APR as if there is a suspicion that the cancer is back. My colonoscopies post-treatment were done because that's what my doctor insisted upon, not because I was having any symptoms of recurrence.
Richard, I have stage 3B anal cancer, and when they did the colonoscopy and biopsy over 2 years ago, that's when the cancer was found, then started treatment. One year later, my colo-rectal surgeon did another colonoscopy, even tho all PET's were clear and treatment successful. For 2 years post treatment, I had internal exams every 3 months and PET scans every 6 months with follow up by all 3 of my cancer doctors. Now, my next PET is 9 months out, no more colonoscopies for now and internal exam every 6 months. Better to be safe than sorry and trust your doctors or find new ones! Good luck to you!!
Olga likes this comment
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Vital Info

Posts

July 10, 2018

Los Angeles, California 90005

February 6, 1951

Cancer Info

Anal Cancer

squamous cell carcionoma

June 4, 2018

Stage 2

4.1 - 5.0 cm

Negative

No

Fluorouracil (5-FU)

the fears associated with it, the unknown, the WAIT FOR THIS TO START

always learning, that its all around us....its not till it hits you that you realize how common it is

stay positive with me. stay in the now.

not as of 6/04/2018

WEST LOS ANGELES V.A. MEDICAL CENTER-WESTWOOD

during treatment.....try your hardest not to give up on your treatment.....yea- it almost felt like it was killing me but here I am

believe in yourself and/or in your beliefs/god/etc

September 5

1st MRI NOV. 5 2018--NO SIGN OF TUMER/GROWTH....2ND MRI--NO SIGN OF TUMER/GROWTH

a week after having completed my PSA and urine tests(5/22/18), i noticed blood in the toilet and completed the F.I.T--fecal immunochemical test.... I forgot to mail it in and drove to the VA and had them give me another one, did it and that afternoon i returned it...two days later i received a call to schedule a colonoscopy for June 04, 2018. results came back positive for a ployp that was excised and also a 4-5cm malignant growth on the dentate line of the anus--right smack in/around my spinchter muscle. T3N0M0...prognosis seems to be really good as it has not traveled nor gone into nodes. scheduled to start chemo/radiation with 5-FU and mitomyacin first 4 days and last 4 days using a PICC line.

AM NOT USING THE 5-FU....INSTEAD ITS CAPECITABINE 500MG

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